Carers, families and people with lived experience can play a crucial role in the care, support and recovery of people with eating disorders.
A carer can be a parent, partner, friend, grandparent, child, sibling, grandchild, neighbour or any other person caring for someone with an eating disorder. Caring for someone with an eating disorder is a big responsibility and comes with considerable personal strain.
People who are experiencing, recovering or have recovered from an eating disorder are all people with lived experience. Sometimes these people can be referred to as consumers.
This page contains resources for carers, people with lived experience, families, supports and the general public.
NEDC have developed new resources to help equip families, supports and carers with skills and coping techniques.
We also provide links to resources created by other organisations.
The Victorian Centre of Excellence in Eating Disorders (CEED) has created www.feedyourinstinct.com.au, an interactive resource devised to help families of children aged between 10 to 20 to assess the early warning signs of eating disorders in their child. Critically, this tool provides an individualised evaluation of the behaviours the family is observing via a step-by-step Q&A format. Once users progress through the Q&A, they finish with a printable PDF report personalised to their child's experience, which they can take to their local GP for action. The report also provides GPs with best-practice guidelines for further assessment and diagnosis.
Lived Experience Resources
The Centre for Clinical Interventions (CCI) has published their latest set of consumer modules: ‘Caring Less About Your Looks’, which can be found at www.cci.health.wa.gov.au/Resources/Looking-After-Yourself/Appearance-Concerns.
Rather than change specific beliefs about appearance, these modules have been designed to help lessen the impact that appearance concerns can have on someone’s quality of life. They examine the factors that keep people overly focused on their appearance, and introduce specific strategies that target these mechanisms directly. In short, they are about helping people to care less about their looks, and more about other things in life. These modules are designed to be worked through in sequence from Module 1-7. Consumers can work on these modules independently, or with the assistance of a mental health professional.
For more information about CCI, their resources and training, please visit https://www.cci.health.wa.gov.au/
NEDC has created www.eatingdisordersinfo.org.au, a mobile-friendly website specifically designed for a young audience.
NEDC has created www.storiesfromexperience.com.au, a learning resource designed to guide people who are recovering or have recovered from an eating disorder in writing their story. Stories from Experience is a safe place to start writing your story. This resource includes interactive modules and learning content to help reflect on your experience and craft purposeful stories.
The Victorian Centre of Excellence in Eating Disorders (CEED) has created www.reachoutandrecover.com.au, the Reach Out And Recover (ROAR) website designed for adults with lived experience. There is a list of helpful resources and an interactive tool that allows you to generate a report based on your answers to questions about behaviours and thinking patterns related to eating and body concerns.