livED - Be the voice of change for people with eating disorders
About this study
Research Team
Dr Jane Miskovic-Wheatley, Dr Sabina Vatter, Daniel Rogers, Patrick Eades, Dr Shu Hwa Ong, Emma Bryant, Dr Morgan Sidari, Prof Sarah Maguire (CI)
Institution
InsideOut Institute, University of Sydney
Ethics Approval Number
USYD HREC 2023/895
Funding Source
The livED project is part of the MAINSTREAM Collaboration for Health System Research & Translation in Eating Disorders and is funded by the Australian Government Department of Health and Aged Care National Health and Medical Research Council MRFF Million Minds Mission. mainstreamresearch.org.au
Project Start Date
6 June 2024
Project End Date
31 December 2027
Participants
We are seeking people who:
Are 16 years or over
Have a self-reported past or current lived experience of eating disorder symptoms, whether formally diagnosed or not
Have access to a computer, mobile or tablet device via an internet connection
Able to read and respond in the English language
What is Involved
If you are 16 years or above with a lived experience of an eating disorder, we invite you to share your story.
www.livED.org.au
Ethics Approval Number
USYD HREC 2023/895
Location
Online
Contact Details
Please contact researchers Jane or Sabina at livedstudy@sydney.edu.au.
Do you have a lived experience of an eating disorder and feel like you did / did not receive the care you needed? Are you passionate about changing the health system for people with eating disorders?
Researchers at InsideOut Institute are hoping to fill the gaps and silences about eating disorders through ‘livED’. livED is a place where anyone who has ever experienced body image, eating or exercise concerns, anyone who has been diagnosed with an eating disorder or anyone who has a lived experience but has never shared it, can contribute to research. Contributions can be as individual as the person with the choice of journal entries, short responses, recordings, image uploads or health measures. livED is the first of its kind in mental health research, co-designed by lived experience, clinical and digital experts uniquely developed to allow people to share their stories, their way, with the overall objective to improve and diversify the understanding of eating disorders within the community and to inform health system approaches.
If you are in Australia and if at any time are feeling distressed, please call The Butterfly National Helpline 1800 ED HOPE (1800 33 4673).
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