livED - Be the voice of change for people with eating disorders

About this study

Do you have a lived experience of an eating disorder and feel like you did / did not receive the care you needed? Are you passionate about changing the health system for people with eating disorders?

Researchers at InsideOut Institute are hoping to fill the gaps and silences about eating disorders through ‘livED’. livED is a place where anyone who has ever experienced body image, eating or exercise concerns, anyone who has been diagnosed with an eating disorder or anyone who has a lived experience but has never shared it, can contribute to research. Contributions can be as individual as the person with the choice of journal entries, short responses, recordings, image uploads or health measures. livED is the first of its kind in mental health research, co-designed by lived experience, clinical and digital experts uniquely developed to allow people to share their stories, their way, with the overall objective to improve and diversify the understanding of eating disorders within the community and to inform health system approaches.

If you are in Australia and if at any time are feeling distressed, please call The Butterfly National Helpline 1800 ED HOPE (1800 33 4673).

Research TeamDr Jane Miskovic-Wheatley, Dr Sabina Vatter, Daniel Rogers, Patrick Eades, Dr Shu Hwa Ong, Emma Bryant, Dr Morgan Sidari, Prof Sarah Maguire (CI)
InstitutionInsideOut Institute, University of Sydney
Ethics Approval NumberUSYD HREC 2023/895
Funding SourceThe livED project is part of the MAINSTREAM Collaboration for Health System Research & Translation in Eating Disorders and is funded by the Australian Government Department of Health and Aged Care National Health and Medical Research Council MRFF Million Minds Mission. mainstreamresearch.org.au
Project Start Date6 June 2024
Project End Date31 December 2027
ParticipantsWe are seeking people who:

Are 16 years or over
Have a self-reported past or current lived experience of eating disorder symptoms, whether formally diagnosed or not
Have access to a computer, mobile or tablet device via an internet connection
Able to read and respond in the English language
What is InvolvedIf you are 16 years or above with a lived experience of an eating disorder, we invite you to share your story.

www.livED.org.au
LocationOnline
Contact Details

Please contact researchers Jane or Sabina at livedstudy@sydney.edu.au.

See also

Co-Designing a Psychotherapy Program for Negative Premenstrual Change

About the study The purpose of the study is to understand people’s experiences of negative premenstrual change, priorities for professional support, and preferences for a psychotherapy program.

Read more

Does inflexible thinking determine adherence to mental health therapies?

There is little research that explores this topic despite those receiving mental health therapies often face difficulties during treatment and poor treatment outcomes.

Read more

Novel Pharmacological Treatments for Anorexia Nervosa

The Li-Transformative Hub for Research into Eating Disorders (Li-THRED) at Monash University is conducting a randomised controlled trial to investigate the effects of 3 repurposed medications on anorexia nervosa.

Read more

Estrogen as Treatment for Anorexia Nervosa

The Li-Transformative Hub for Research into Eating Disorders (Li-THRED) at Monash University is conducting a double-blinded randomised controlled trial exploring the effectiveness of estrogen to treat eating disorder symptoms in women with anorexia nervosa.

Read more